Choosing Down Syndrome - Kaposy, Chris

. .

Résumé :
An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective.

The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome.
Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome.
Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.

Biographie:
Chris Kaposy

Sommaire:
Preface ix
Acknowledgments xix
1 Introduction 1
2 Ongoing Debates about the Ethics of Prenatal Genetic Testing for Down Syndrome 17
3 Autobiographical Accounts of Parenting a Child with Down Syndrome 37
4 Adaptive Preference and Empirical Research about Families of Children with Down Syndrome 57
5 The Wrongful Disability Objection 73
6 Is Selective Termination Morally Wrong? 105
7 Down Syndrome: Identity and Disability, a Normative Pragmatic Account 125
8 Conclusion: The Negative Influence of Capitalism on Reproductive Selectivity 149
Afterword 169
Notes 177
References 185
Index 207