Ethics and Research with Children -

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Résumé :

• Chapter 1: Ethics and Research with Children: Introduction to the Second Edition
• Eric Kodish and Robert M. Nelson
• Chapter 2: Ethical Challenges Related to Participation of Adolescents and Young Adults with Intellectual Disability in Research
• Pamela Nathanson, Theodore Schall, and Chris Feudtner
• Chapter 3: Ethical Challenges Conducting Pediatric Research in the Era of Scarce Drugs
• Yoram Unguru
• Chapter 4: Catastrophically ill children, access to unregistered medical interventions and trial recruitment needs: an ethical analysis
• Thomas Hartvigsson and Udo Schuklenk
• Chapter 5: Ethical Issues in the Neonatal Surfactant, Positive Pressure and Oximetry Randomized Trial
• John D. Lantos
• Chapter 6: Invasive Placebos, Patient Burdens and Community Advocacy: A Federal Ethics Panel Protocol Review
• Donna Snyder, Catherine Lee, Robert Nelson
• Chapter 7: When if ever, is it ethical to do research in developing countries that could not be done ethically in developed countries?
• Lainie Friedman Ross, MD, PhD
• Chapter 8: The Welfare of Children, Research Ethics and the Bucharest Early Intervention Project
• Maria Master and Joseph Fins
• Chapter 9: Ethical Issues in Genetic Research with Infants: Biospecimen Use and Genome Sequencing
• Erin Rothwell and Jeffrey Botkin
• Chapter 10: Parental Permission for Neonatal Clinical Trials
• Benjamin Wilfond and Anita Shah
• Chapter 11: Communication and Decision-Making with Parents and Seriously Ill Children about Phase 1 Research Trials
• Melissa K. Cousino, Wynne E. Morrison, and Victoria A. Miller
• Chapter 12: Involving Parents and Children in Community Engaged Research: Ethical Considerations
• Erin Talati Paquette and Lainie Friedman Ross
• Chapter 13: Social Media and Pediatric Research Recruitment
• Luke Gelinas and Jennifer Cohn Kesselheim
• Chapter 14: Payments for Participation of Children in Research
• Douglas S. Diekema
• Chapter 15: Clinical innovations near the boundary of viability - the artificial womb
• Ryan Antiel and Alan W. Flake
• Chapter 16: Synthesis and Concluding Reflections
• Robert M. Nelson and Eric Kodish